Focusing on rare diseases in China: are we there yet?
نویسندگان
چکیده
The Chinese researchers have made significant progress in studying rare diseases in the recent years. From 2000 to 2014, 269 out of 1892 clinically relevant original research papers published on high impact journals by Chinese institutions, and 2678 out of 6040 clinical trials conducted by Chinese institutions and registered at ClinicalTrial.gov are focused on rare diseases. The number of research papers and of clinical trials has shown a steady trend of increase. Creating public databases for rare disease will escalate progress in rare disease and enable multicenter studies.
منابع مشابه
Research on economy and social exclusion: China dolls and rare diseases.
The second workshop on "Research on Economy And Social Exclusion (REASE)" was held in the University of Tokyo on January 26, 2013. Focusing on rare diseases and disorders in China, three speakers from China introduced the current status of rare diseases and the challenge of support organizations for patients with rare disease and disorders in China, and especially pointed out some important iss...
متن کاملEffects of European Sovereign Debt (Leverage) Crisis on Bilateral Trade Flows
Outbreak of 2009 European sovereign debt (leverage) crisis has been one of the most crucial economic events of recent years. Accordingly, researchers devoted a great deal of efforts to elucidate origins and consequences of this crisis, particularly focusing on its potential effect on international trade flows. Yet in the literature, there have been rare studies on exploring the effects of sover...
متن کاملمعرفی یک مورد کراتودرمی همراه با کری دو طرفه
Introduction: Various inherited or acquired disorders are characterized by palmoplantar kera-toderma hyperkeratosis of hands and feet, and when accompanied with deafness indicates mutations in the gene encoding connexin -26 or a particular mutation (A7445G) of the mito-chondrial t-RNA coded for serine (MT-TS1) is created. Case Report: On skin examination of a 7 year old boy, we observed hyper...
متن کاملChina’s Energy Security: I.R. Iran and Saudi Arabia’s Role in China’s Energy Diplomacy
This paper examines the possible choices and energy security plans of China, focusing on its relations with I.R Iran and Saudi Arabia in the Middle East. Needless to say, these two rival countries in the region are both among the top oil producers of the world and China has deep and old cooperation with both countries. Meanwhile in its new strategy, China tries to establish a kind of balance am...
متن کاملCutaneous and pulmonary Nocardiosis in a patient with Pemphigus
Pemphigus is a chronic blistering mucocutaneous disease, classified in immunobullous skin diseases. Infections, particularly septicemia due to Staphylococcus aureus and Pseudomonas aeroginosa are the most common and dangerous disorders due to immunosuppressive therapy in this disease. Infection with nocardia is rare, so that only 6 cases have been reported yet. Herein, we report a 56-year-old m...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
عنوان ژورنال:
دوره 10 شماره
صفحات -
تاریخ انتشار 2015